Showing posts with label IV drips. Show all posts
Showing posts with label IV drips. Show all posts

Wednesday, 19 April 2017

THE MYSTERY OF THE ORIGIN OF SEPSIS

Four days in a blue box and then suddenly, huge windows overlooking fields of gold, a giant chessboard and the brief sounds of children playing.


I have been admitted again. For the third time this year - and the manyth fever spike. The Mystery of the Origin of Sepsis continues to baffle. Is it Infection or is it The Lupus? The awful perennial question. For the doctors it is a problem that must be solved to avoid over treatment. For me, although I have an equally honed detective instinct, the clues all occur in the same body. The same mind must control the same fears and maintain a ninja like balance.

In the blue box with no windows - let us call it MDU or Medical Decisions Unit - lives Rosie. Rosie's husband Dave was brought into hospital and since he is her carer, Rosie was admitted at the same time. For much of each day and each night, Rosie keeps her coat on and her handbag tucked neatly into the crook of her elbow, ready to leave. Not a word in her strings of sentences makes relevant sense, but must surely make perfect sense in the world she inhabits all by herself. T'was quite alarming having Rosie peer round my curtains like a friendly bat looking for her mate. It was only on the last night when another patient with dementia arrived, one with a particularly nasty tongue, that Rosie's comparative sweetness shone through. A lost little bat, in the entirely wrong cave.


And then I was wheeled away to be transferred here to Hepatology. I waved royally to my fellow inmates as Greg The Porter deftly manoeuvred my bed past them - you lucky duck, said Brenda, turning green, thinking I was heading home (although how I could leave, bed et al...). It was my opposite neighbour's 78th birthday and she was teary hugging me goodbye. We make friends fast in the blue boxes...

Margaret wasn't allowed flowers in MDU, not even birthday roses... but here in Hepatology, my cousin Imran, dressed in an excellently cut suit jacket, brought me Chicky Chocky Speckled Eggs and a delicate bouquet of pink and white posies. They'll have to wrestle the posies away from me...


Saturday, 11 April 2015

HOW TO SURVIVE RITUXIMAB


1) Do nothing.

2) But when the drug, which makes your heart and mind race, wakes you up before dawn, lie there and hope for sleep again.

3) When there's absolutely no hope, totter out of bed into the kitchen, scrabble around the fridge and settle on a virtuous carrot.

4) Wash the carrot down with a few ginger biscuits, a glass of water and several white tablets. Remember you still haven't renewed your various prescriptions, promise yourself you absolutely will attend to it later and then forget all about tablets by

5) finding the most mind numbing documentary on Netflix. It's called, say, 'The Queen of Versailles' about a rather grimly mismatched couple determined to build the biggest, brashest house on American soil. You will retain nothing later except a solitary fact about the real Versailles almost bankrupting France with its gilt and glory. This from google and not the documentary.

6) No fever or tachycardia yet and you float about between bed and kitchen, eating noodles, watching rain turn to sun, and wondering why you aren't simply stepping out of your little house and walking the half hour to your nieces, one of whom has taken to saying, 'Shai! gone!' with a sad little flick of her hand.

7) At 4 in the afternoon, you have a high point of wellness. You steel yourself not to get dressed or put your contacts in, but to sit, still pyjama clad at the open window, sun blazing into your half shut eyes, drinking coffee laced with syrup and two Jaffa cakes melting as fast as you can eat them.

8) By half past five, sun turned to long shadows, you are in bed with a creeping temperature, a steady marathoning heart and a throat that burns with a thirst you cannot pacify. In the doorway, an old fashioned tape player and Catherine Alliott's rural comedy A Crowded Marriage. A fox has decapitated Cynthia. Not the heroine. The chicken...

9) You think about washing your hair.

10) You listen to the birds.

11) You write a blog post about how you survive Rituximab the wonder drug. The cancer drug. The lupus drug. The soon to be Parkinson's drug. You think about cupcakes, not the cake but the frosting. And washing your hair. And how quiet it is because the tape needs to be changed to Side 13. You take a breath, prepare to peel the blankets off your curled up legs and brace for cooler air. There will always be more tea, hot buttered toast and you will

12) begin again.