When I was 18 I was diagnosed with an illness called Lupus. I began to chart the journey in poetry, filling many journals, always imagining the experience would eventually curve into a neat end, and the whole could be shared with others. I am 30 now and rather than ending, there are only beginnings and growth and life continued. Lupus continued.So this is an experiment and an invitation to you to share the journey. Join me anywhere, in light or shadow, and you will have joined me then and now.
Shaista
7 comments:
Hi Shaista,
I hope you don't mind that Riz shared your blog with me. I think you're incredibly brave and strong, and many would benefit from being inspired by the way you live your life, your thoughts and words. Thanks for blogging and keep writing!
Li Han
Oh I don't mind at all! Riz is a great source of inspiration and strength and patience. Makes it all much easier to bear when you have magic brothers :)
I hope you keep reading - I'll keep writing.
Shai
Oh Shaista how I hate Lupus. It is our enemy.
Love Renee xoxo
Hello! I am definitely going to be visiting and reading. Having had a friend who had lupus, I will be most interested to read about your journey. Not just the lupus though - for the other things you write about too. Thank you for coming to my page.
I am touched and humbled by your kind comments, and in awe of the creativity that you have manged to channel postively from your experiences. Your poetry is astonishingly beautiful. Thanks so much for sharing so much, so selflessly.
Jane Wilson-Howarth
Stumbled upon your blog through Poets United and grew intrigued first by the lovely picture at the top, (I am an avid elephant lover)and by the many reference to Lupus - my aunt has the illness and I have several friends also that cope with it. You are handling your disorder with such grace, I wanted to tell you that - your blog is rich with photos and eloquence and thank you for sharing so much of your life with us. May you walk in light and hope always.
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